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Old 08-30-2010, 10:54 AM
Sheltiemom18 Sheltiemom18 is offline
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Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
10 yr Member
Sheltiemom18 Sheltiemom18 is offline
Member
 
Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
10 yr Member
Lightbulb Another Small Fiber Post

After spinning around in circles for weeks trying to decide what to do next - first settling on one thing and then another - the path became clear this morning.

After finding by dumb luck the abstract in all its glory about small fiber neuropathy and its manifestations written by the neuromuscular doc who did my skin punch biopsy and diagnosed SFN back in January, have called her for an appointment. I had not known of her and was set up way back then for the initial appointment with two other neuros about which I knew nothing.

Because it's the Cleveland Clinic, they have a protocol in place that says if you are doing a "change of provider," polite language for dumping your doc, you must go to the back of the line. First COP appointment with her is January 3, 2011.

The secretary said she'd do everything possible to see if the doc would fit me into the schedule anyway well before that as she'd done the biopsy. Plus the secretary put my name on the cancellation list.

Fingers crossed that the appointment is going to be sooner rather than later.
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