I'm not sure about too many blood vessels, but I did have a dopplar done when the pooling started, and they said it came out as normal. Would that problem show up on there?

I don't see pooling anywhere else, but I suppose it could be possible.

So you think I have something more severe than POTS? I wonder how I would find out if that is true... not that it really matters, but I'm trying to get disability right now since I'm bedridden, and every diagnosis is crutial right now... I need to know exactly how bad it is so I can tell them.. they are still asking for more information and deciding on my case.

The problem is, it was at Mayo that I was diagnosed. I can't get back to Mayo to be retested, and I don't think they do those tests around here.

I'm just so frustrated that Mayo didn't bother to tell me about this--and a lot of this could have been prevented/treated early on.

No, I have no done the compression stockings. I cannot because of the PN... I can barely handle regular socks and cannot have anything touching my feet--and they said I would have to put those on over my feet and that it would be extremely painful.

One doctor gave me a cream form of whatever it is that people take when they think they are having a heart attack... nitro something or other... to open up the blood vessels and allow the blood to flow... but it didn't do anything.