I've been having problems for about 10 years now. I understand about all the different symptomes. For me I had symptoms like that and many more. Some would come and go. I couldn't figure out if anything was really wrong with me or if I was going nuts. The pain has always been there though and it is freekin REAL. I to can hardly remember what it's like to not have constant pain.
I just started taking Lyrica 75mg 2xDay. It's been over two weeks now and I'm pleased with what it does. Some of the pains in my hands and feet are better. That's the most notable but I feel generaly somewhat better all over. Although my back, hips and neck still hurt quite a bit.
I think it's helping with fatigue a littlt to. It's a little early to know for sure. I hope it stays better for awhile.
Taking different drugs is very screwy too. The different side effects. It's hard to figure out if they're making you better or worse. Some take a long time before they help. Some side effects go away after awhile and some get worse.
I tell you sometimes I felt like a zombie from taking all those drugs, Sometime everything felt unreal and I even felt like a total different person and not for the better. I have anxiety and depression too , so I've been through a long list of drugs. I deffinetly want to try Savella sometime too, to see if it works better. I'll wait for awhile though. I have the $30 co-pay on my Lyrica so I guess Savella should be the same.
Well good luck Doody and I understand how you feel. Hang in there!
Quote:
Originally Posted by Doody
I'm glad the topic of Savella was brought up, but disappointed with the different experiences.
Talked with my doc today about my chronic fatigue, depression, bad anxiety and daily pain. Though my pain for the most part is bearable, I honestly don't know what it would be like to not have pain! The flares are of course just awful as you all well know. But the daily chronic pain really sucks.
I've also been experiencing much worse problems with memory and...well, I don't hardly know how to describe it! I mix up words really bad and can look at somebody I know well and have to think for a minute who they are! The funny thing is my words. For instance, instead of saying something like..."Silly me!", I'll say "Milly see!" I often don't even realize it until the person I'm talking with looks at me weird and says "HUH?" LOL
Now the doc told me that Prozac is notorious for that, but the memory thing is not. He asked me about any unusual stress. Well, normally I'd say I'm always stressed out, which is true...part of my anxiety. But this last year has been extremely stressful with my 25+ year job at the university being cut back. Being single, this new and large cut in my pay is awful.
Anywayyyyyy...he said he wanted me to come back in 2 weeks...to give me time to research the Savella...(He knows me all too well, LOL!) He knows I have a lot of fibro friends and belong to this board. So he said to take the time to research and think about taking the Savella. He said it's more like the SNRI's (?) than it is the SSRIs. It has epinephrine going for it.
I guess his thought is that it would also help the depression and anxiety and help with the chronic fatigue...help with more energy.
Then I go out and read what others have said and I think...oh for sure, I'm one of those people extremely sensitive to antidepressants and I'll probably be one of those that is affected badly.
I also suffered serotonin syndrome once many years ago and NEVER EVER want to go through that again!
Just don't know what to do! I'm happy for those few that are having a good experience with the Savella. I took Cymbalta for quite some time but ended up having an overall bad experience with the depression and suicidal thoughts, quite bad actually. So, he took me off that. I was hardly off the Cymbalta for a day and boy did I have the fibro set back in, so I knew it was helping the fibro! Aargh.
Not too excited about the $30 co-pay for Savella either. Well, if I do try it, I'll let you know how it goes. I definitely don't want to go back to headache land, being a migraneur...that doesn't sound like a side effect I want to deal with.
Thanks for all your information. 
Dang, that was a long post! Sorry!  |