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Originally Posted by SandyS
Hi all and thanks so much for the prayers
Lindsay slept through the night. They took her off of the Morphine IV and put her on Toradol! It was amazing, no crazy narcotic crying she was up and laughing and slept though the night until of course at 4am they came and tried to find a vein, so she was tortured a bit. But went back to sleep and it is 6:30 am and she is still sleeping.
They believe that the narcotics are causing her stomach etc to enflame and cause this. We all know that RSD is a monster. They are probably going to start to let her eat today, so please pray that she is able to keep it down so that I can take her home.
By the way, they want her off of all Narcotics.  How will she manage pain this way. She is taking Cymbalta and Trazadone at night and oxycodone which they have stoppped. We have stopped the trazadone and are talking about a sleeping pill... any thoughts to any that do not cause sleepwalking or side effects???
I will post tonight to let you know how she is doing. As far as gastroperesis we are meeting on Sept. 8th with this Gastro I want to get her home and I will research more and have this discussion in the office.
I love you all, you are part of my family and I so appreciate all of your prayers and support.
Love, love, love,
Sandy |
Hi Sandy,
I am so sorry about your daughter and hope she feels better today. First I just want to ask how long she has been on narcotics? If it is a substantional amount of time 6 months or more she will go through withdrawal. If so the doctors should give her suboxon it's a drug that takes away 90% of withdrawel. FYI a doctor needs a special license to rx it, a PM doctor is the most likely doctor to have this special license. Don't let them BS you it works, its easy I have done it. At one point after a ketamine infusion I felt I was ready to get off everything and it work like someone just waved fairy dust over me. Before I go on I also believe the less narcotics the better it took me a long, long time for my PM doc to make me understand that. I had to go back on because after time the pain did return but slowly.I am on the least amount of pills since my accident and I will not ever take any long lasting i.e. oyxcontin, Opana, Avinza I've been on them all and no more anti-depressants. I think providing anti-depressants for a pain condition does more harm then good. I have been on Cymbalta, thought I was going to die, depakote, Zoloft, I can't even remember the rest. I understand why they do it but in my opinion I don't think it should be done. On the other hand drugs like Xanex, Ativian, Klonopin(which is a little to strong for some and is a benzo. so be carefull with it) takes the stress away which helps for RSD patients.
I know everyone is saying to themselves she does not have RSD that bad. To justify the above I almost lost my arm,had 7 surgeries, 10+ months of PT which was torture,many procedures SGB, epidurals, 3 - 5 day inpatient ketamine infusions it was a 6 year ordeal and I also have PN. But today I work Part Time and successfully was awarded perminent disability. Which was not what I thought I would be doing in my 40's with a degree in Computer Science. But I could never work full time and the stress of being a computer consultant which includes air travel and clients who think you should give them blood, it makes me shiver just thinking about it.
Sorry to get off the track but I hope things go well today and keep us all posted. My prays are with her.
Gabbycakes