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Old 08-31-2010, 09:06 AM
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Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Talking One minute of my life today

Ready?

My phone rang this morning at 8:00 a.m.
I am usually asleep or on my way to bed at that time but today I was right next to the phone so I grabbed it.

It was my doc. He said "I NEVER call patients to give them test results, but I just had to call you and share this. You are my first patient who was tested for the JC virus who had negative results"

I was speechless and he started laughing. He says it's the first time I ever had nothing to say.

I let out a whoop that all the summer people in my neighborhood must have heard and did some of this:



He said he remembered that I told him I would be his first negative patient when he did the draw for the test. I am the only one who has come back negative so far and he was getting discouraged by all the positive results that he had to tell people about.

He cautioned that I have to remain vigilant and that we don't know what the test means yet and that there is a 2.5% false negative rate, we don't know how the virus is transmitted, etc, etc, etc. and that the next test will tell us more, but that as far as he is concerned, there will be no drug holiday if I don't want one!!!!

I told him that was a good thing becaue I was having a hard time with the fact that I had agreed to let him be the doctor if I was positive.

I just had to share! Now I am going to bed cause I have a date with the Yabbit this afternoon. She has an appointment with my doc and we are going to meet and eat afterwards-- our favorite activity!

I wish you all a solid, heartstopping moment of overwhelming joy today, like I had this morning!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline  
"Thanks for this!" says:
barb02 (09-01-2010), Grammie 2 3 (08-31-2010), komokazi (08-31-2010), Natalie8 (08-31-2010), Pink (09-03-2010), shayna (09-01-2010), Twinkletoes (08-31-2010)