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Old 08-31-2010, 05:29 PM
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pingpongman pingpongman is offline
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Join Date: Aug 2010
Location: South Carolina
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10 yr Member
pingpongman pingpongman is offline
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pingpongman's Avatar
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
Default Update

Well I went to ALS Center in Charlotte today. They gave me about 2 hours of different muscle tests. I think they were setting a baseline to test in future looking for improvements. He also told me I had general MG not Ocular MG. He told me to continue my 60 mg of Mestinon 3xday. He then prescribed 180mg of slow release Mestinon at bedtime. He said there were many more drug treatments available but wants to start slow plus they took 12 vials of blood being sent to Mayo. Results will be back in 2 weeks. He wants to see if he can isolate the specific MG. He also wants to check for cancer before using other drugs. He was very interested that my Mom and 2 of her sisters had MG. So we will see how it goes. Doctor said I could see results in 2 weeks if the slow release helps. Thanks for all the thoughts and opinions. It helps knowing you aren’t alone in this battle.
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