Rach, I don't have time to respond right now, too much going on. I thought you'd find this story VERY interesting and maybe helpful.

http://abcnews.go.com/Health/ohio-gi...ry?id=11100570

http://today.msnbc.msn.com/id/304142...y-today_health

Take care of yourself.

Annie

Okay, I'm back. This woman had gastroparesis, they think from a virus, and they implanted a pacemaker to stimulate the nerves around the stomach. Can you remember if something set your symptoms into motion or if they have been there as long as you can remember?

I can't remember - have you ever had a sleep study? I am wondering about a central nervous system issue.

I wish I had an answer or more ideas for you. I can't stand that you don't know yet, at least for certain, what is going on. Is the Mestinon still working or is it only doing just so much?

I'm glad you at least have one doctor helping. You need more!

Are you taking the sublingual B12? That way, you don't have to "swallow" anything and it goes to work in the bloodstream right away. It can take MONTHS to recover from a deficiency, which you obviously had. And who knows how long you had it. I hope you will take higher doses of it (5 mg or more) and a few times a day.