Personally I think I am okay with not knowing. I don't feel like spending more time, money, and energy getting a diagnosis. I might mention it to one more doc every year or so, but just offhand. Just too tiring to deal with their reactions and questions. I am still interested in reading and discussing with others online sometimes, especially to share the info I do have with others. I would like to form my own hypotheses and opinions, and I simply find certain physiology and science interesting.