When the rep asked me if I had any questions let me think !!
I asked about jcv test coming back positive. She said 80% of adults have been exposed to the virus-it is dormant and 65% of adolescents. It doesn't mean that 80% will get pml-just that they've been exposed to the virus.

Fifty percent of those that contacted pml had received immunosuppressant drugs prior to Ty.

As of 8/4/10 there are 71,400 people who have had Tysabri (I said 1 or more infusions-she just laughed ...??) world wide 40,800 are in the U.S.

Biogen does have 2 financial aid programs but does not help with infusions.

I complained again that we want info like it was presented till 7/24/08. I told her that next month will be 4 years for me and telling me chances of pml increase with time on Ty means nothing - I need and have the right to have real odds so I have the info to make an informed decision. She agreed, took notes and said she will pass on.

Just wanted to share
Linda