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Old 09-03-2010, 07:46 AM
Jimking Jimking is offline
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Join Date: Mar 2009
Posts: 879
15 yr Member
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
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Quote:
Originally Posted by hurting View Post
Boy I am glad To see some real post about how these SCS really work for people with nerve damage in the upper part of our body's arms, hands, wrist ect.

In the past 2 days I have read on this and another forum a lot about SCS nightmares. It seams that these work well on folks with lower back, hips,and leg pain. When it comes to arms, hands, wrist, shoulders with nerve pain is when I have read most not all but upwards of 95% had theirs removed.

My PM Dr has been trying to had sell me on having one of these implanted even before he ever looked at me. I had a Dr.visit last Tuesday and he again tried again to hard sell me on this after seeing him for 6 months. I told him no so he wants to send me to the Mayo for a 2nd opinion. My nerve pain just keeps getting worse and spreading up my arm into my back. My pain on my meds stays around 7+ to 9+ by the end of the day.

My PM Dr. has told me that I have the worst case of crpsII in a whole arm, hand, wrist, shoulder area that he has ever seen. As I have told him I do not have a very good feeling about someone messing around my spine in the nerve area since this all comes from a Dr. cutting my nerve by mistake in the first place.I ask my Dr. some questions about the SCS and I saw that he was getting p.o. with me. I have a voice in the back of my head that keeps telling me to not do this. I have to go with my voice it has never failed me yet.

I feel very bad for all these folks that have had this done and are now in more pain then before. I hope over time that there pain from these SCS will go away. It is sad to try to re-leave the main pain only to end up with more unexpected unnecessary pain.

This is my 2 cents on this subject.
This is the main reason my wife will not consider a SCS because she has upper limb RSD that has spread to her lower limbs. I too have read several unpleasant issues with scs and upper limb RSD.
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"Thanks for this!" says:
hurting (09-03-2010)