HI everyone! I love reading all your posts and seeing all the compassion and encouragement and infos. So very helpful. When my neuro of 3 years finally stated last Monday that I have MG, I burst out laughing, "What do you know! You and I are finally on the same page!!!" Thank God he laughed. So it was off for the chest ct scan. Now we wait results and options as surgery and type or not at all. I hate waiting! Will do nerve/muscle exam this Tues. Am so relieved as neuro finally started me on the mestinon and I am alive again! Even if its only for an hour every 3 hours! I'm up to 60mg every 3-4 hours depending on activity or body response. My neuro allows me to adjust meds as needed. Which only makes sense as some days I am homebound with limited activity and on other days more active thereby needing a higher dose to keep muscles lubricated. Mestinon is a huge sigh of relief after 9 years of waiting for a diagnosis. Actually it was the opthamologist who gave the diagnosis of ocular MG and now all docs are scrambling off in that direction. Because of my DID diagnosis, they have been reluctant to do any invasive proceedures in the past. Even tho I have over 30 demylineating brain lesions, a brain tumor(sm), frontal lobe seizures that affect the autonomic brain system(can stop breathing and heart in a snap of the finger). My days are numbered so I just keep them happy. I tell everyone that Im on strict doctor's orders ...I can only do HAPPY! lol I have learned alot on how to cope, relax, and enjoy the absurdities of this disorder-miserable as it can be on many days. The key is LISTEN to your body.