My spasms are still really bad though they have settled down somewhat with invasive physical therapy (5 weeks intense PT with weight bearing exercises ... extremely painful but told they would help with the myoclonic spasms) and with the muscle relaxant baclofen.

I still have them a lot on a daily basis and they get worse when I have done too much. Because they are still bad and I have Dystonia, my Doctor is wanting to do the intractable baclofen pump on me to see if that would help.

Heres the video to what my legs like when its really bad with the spasms: http://www.youtube.com/watch?v=xIXak...ext=1&index=47

I hope you feel better soon if you have the spasms also as I know how debilitating and painful they are. I'm always here if you want to talk.

Ali x