Originally Posted by cookez

I have been struggling with what I thought was an ear infection for quite awhile. I was on three different antibiotics with no relief. I finally went to my ENT and he told me that my ear was fine. He then ordered a CT scan of my parotid. This came back negative for parotid or salivary gland problems. The pain continued without relent. I subsequently had 2 MRI's of my neck & brain. The diagnosis is TN. I am currently seeing a neurologist who has me on a low dose of trileptal and large dose of percocet. I also suffer from CVID and receive monthly infusions of IGG. I was wondering if anyone knows if there is any correlation between the two since they are both not very common afflictions. I have a little relief from the trileptal but hope to acheive a better pain response as he increases the medication. I thought I was losing my mind. Never in my life did I have so much pain.