I know what exactly you're talking about Sue.

It started out that I could not sleep on my left side, then it went straight to my whole back.

I had the sleep study when I experience the inability to sleep on my left side, and it showed nothing, because I absolutely refuse to sleep on my side.

My Theory:

I do not think its the thymoma that I have, which is 5.7 cm.

What I figured out, as someone without a medical degree, is that my muscles are weak aground the lungs. Plus, you apply the extra weigh on those muscles, when you rest, and you wake up feeling as if you're drowning.

Now, that I returned to taking Mestinon, I can sleep at night.



The following in an earlier post I listed the exact same symptom:



Fortunately, the tissue on the thymus had stop growing and it was benign. However, my NIGHTTIME breathing was getting worse, in that I was now no longer able to sleep on my left side or back for long periods of time, without feeling deprived of oxygen.


Long story short, he told me to resume taking Mestinon but keep the dosage low 90mg/a day, which remember at first worked wonders for me, giving me muscle strength. However, I was not able to remember whether it supported my breathing, since I pretty much slept on my right side to avoid an interruption in my sleep.


This time, the doctor wanted me to pay attention to whether the meds were allowing me to get a proper night's rest, and I must say they did, though there is slight blurriest in my vision from time to time.


I looked it up and blurred vision is a side effect, but I don't know whether I should stop taking the meds, because of that.


Anyway, I have a follow MRI in about four months to monitor the tissue on the thymus.


I want to know is whether or not I have MG?


The doctors have said it was hard to determine, because I only have weakness or symptoms on only one side.


After much thought, I think I must have weakness on my left side, because I literally felt as if the left lung wanting to expand but struggling and constricting, whenever I would recline on the sofa for about twenty minutes or so.


It felt as if the weight of my body reclining on the lung was too much for the muscles to support in that position. If I stood up, it was much better, but the pulmonary function test showed I had difficulty exhaling on two tests.


I don't know. I did know I had slight breathing concern while in an upright position, doing minimal activity. However, it was nothing compared to my nigh time sleeping on my left side.