Quote:
Originally Posted by PAYNE1
Off hand, the two don't sound related to me. The facial pain is supposedly coming from some sort of irritation to the trigiminal (sp?) nerve to the face. However, since I had never heard of your first diagnosis, I wouldn't bet all of my money on this thought. My goodness, people have such tough medical problems. Sorry you're having to deal with all that!
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hello to all,
I have TN and was diagnosed over a year ago. I had 4 root canals in 3 teeth before being diagnosed. For several years prior, I used to always think I was getting an ear infection, especially with a cold. dr would always tell me ear looked fine.
I now realize I was probably feeling the first of Tn.
I also have sero negative rheumatoid arthritis which is an autoimmune disease. It sometimes messes with my IGG level.I take one of the new biologic drugs for my RA. my rheumatologist is not convinced I have RA, but I do respond well to RA drugs and have enough symptoms to fit in this category. she says she sometimes believes I have so ethnic rare and one day someone will figure it out. as of now, nothing shows on tests.
She also believes there is some sort of connection between my Tn and autoimmune disease. I have had other strange issues such as my small blood vessels in the retina of my left eye necrotized and burst and caused my eyesight to go blurry. everything is always on left side of head.
all the near Dr say that the only autoimmune disease that has any connection with TN is MS. they tell me I just had bad luck getting more than one thing.
I have had 2 MVD to fix Tn and it seems to maybe be okay for now. I was left with damage to my occipital nerve from one of the surgeries and am now dealing with that.
hope this info helps.
Easygoing