I have to get another round of MRIs in a couple of months. The doctor never officially said thymoma. He said it is tissue that 5.7 cm on my enlarged thymus; it was originally only described as a remnant. I assume tissue means tumor.

In the process of discovering I had tissue growing from a remnant, to 2.5, to 5.7 cm, my father was dying in the hospital.

The last MRI showed no growth.

Anyway, I am using this time to sign up for disability insurance, so if or when I have surgery I won't be hit financially.

I do appreciate all of the great advice on this website, and for my next doctor's visit, I will come armed with information. Personally, when the doctor changed his mind from surgery to no surgery, I was personally relieved. However, I really didn't know why he changed his mind other than the MRI showing no malignancy.

After I see everyone had surgery and their tissue was less than mine, it got me back to thinking. Am I getting the best care? I will request another neuromuscular specialist, if it is possible, because I do not think the doctor has enough experience in the disorder.