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Old 09-07-2010, 05:14 PM
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LordWood LordWood is offline
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Join Date: Apr 2008
Location: PA
Posts: 86
15 yr Member
LordWood LordWood is offline
Junior Member
LordWood's Avatar
 
Join Date: Apr 2008
Location: PA
Posts: 86
15 yr Member
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I've been dealing with specialists since I was 1.5 years old as I started with Ulcerative Colitis and then it went to crohns. I've had more health issues then most people have in there entire life. I've dealt with RSD specialists since 13 so don't mistake what I say or put words in my mouth. What other "modalities" physical therapy? HBOT? Nerve blocks? Or perhaps there new method of freezing and killing the nerves they choose to do it to? I will not even list ketamine as its a joke and a lot agree with that and I'm not just talking little infusions I'm talking also about those that get the full schwartzman routine. My apologies as from most of your posts you act like your in remission. In regards to your additional post I have 2 pharmacists that are family friends as well as doctors. I was thrown into this insane world of RSD just like many others who started younger and yes we actually do know quite a bit as we've had our lives stripped away and quite a number of years dealing with it. Just because your older does not mean you know more. Hopefully you can understand that others do actually know what were talking about.



Quote:
Originally Posted by gabbycakes View Post
Lordwood,

First when you say you have been at this for 7 years also, I believe you stated in a previous post you are around 19 or 20, so you where 13 and collecting data from doctors? I do not have any reactions from meds. I take and get whatever I need so don't mistake what I say or put words in my mouth. And I am not in remission I suffer everyday just like you and all of us who have this disorder. I have had decided to try other modalities to change the way we all have to live with RSD, drugs are not the answer all the time, but I do take them when I need them and sometimes everyday. I hope I cleared up your misunderstanding.

Also, there are quite of few people who agreed with me so I really don't know what to tell you...
Gabbycakes
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