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Originally Posted by edever34
Welcome-You are in the right place with people who truely care and help where ever we can . Do lots of research and come here often! Fondly-Carol
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Nice to meet you, Lisa..
I am sorry for your RSD dxnosis.. RSD is very mysterious and complicated..Many of us here and we all care deeply about our friends..Glad you came to us... Yes, if possible, go to the clinic as time is of the essence.. please, educate yourself as much as possible and the website Sandy recommended is a wonderful place to start.. I, too have a very painful gait, I walk with a decorative cane, I have many of them..it's important they match m outfits.. my rule!.. RSD began with my Rt. knee following surgery then mine spread into whole body RSD..Please, be proactive in search of a neurologist, anestisologist and or a Pain management Dr...I, too am unable to withstand pain meds..so I am cold turkey RSD for 3+ years..it can be trying but I try to stay sane inspite of the intense pain..Many interventions available such as nerve blocks..tens units.. advanced RSD, Spinal cord Stemulators and Ketamine treatments.. most importantly is to find a knowledgeable Dr. well versed in RSD and educate yourself and be your own best advocate with this illness....
You will have much support here .. we are a close family who care a bunch so plz. ask away...we'll do what we can to help you..
Hugz, Kathy