Originally Posted by brandi

I am a 44yr old female born with spina bifida form called mylomeningocle and
also had hydrocephalus in which a shunt was placed. I had revision of my shunt in 1995 and was fine up till now.

Had recent MRI's was told now have Arnold Chiari type 2, a tethered my spinal
cord and slit ventricles, 4 discs in neck are pressing on spinal cord and one of
four should be removed. I am from pennsylvania looking for advice as well as
any good neurosurgeons anywhere willing to go.

I have been to a neurosurgeon that took two hours to get to and told me to
live with my situation of constant pain refused even medication also told me
any neurosurgeon that would operate on my head or spine is crazy by the way a two hour drive to see him and time he spent with me was less than twenty minutes.