Quote:
Originally Posted by sick of it
new to chat. not sure how this works. i was just dio, with rsd. stomac. would distend like i was 7mons preg. horrible pain with burning. in and out of the hospital with stays for weeks at a time. just got a block and what a diff. any one else going through anything like this
thanks
steph
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Hi Steph, So sorry you have RSD. You will find so much support and compassion here on Neurotalk. I've had RSD 15 years and have internal RSD now. To touch my skin in stomach area is like 105 degrees. stomach is distended also. I do use cool wash cloth at times to cool down and drink cold water. I have burning in pelvic region and others on the forum write about their issues with it. There is a compounding cream- a compounding pharmacist can mix up to put on outside-I'm not sure internally, but I will do some research and write back what it is.
My RSD started following surgery with frozen shoulder, now full body. Most start with either surgery or some form of injury. I've never heard of it starting internally first. Did yours start internally or outside first?
Again, welcome to NT and hope you get some answers. Do you have a good RSD Doc with experience. RSDSA is the national organizaton for RSD. Also rsdrx.com puzzles list is a great site. A Dr. with 40 years experience has a list of 150 questions and his answers-he does talk about internal RSD on one of the questions.
Take care, one of your new friends, loretta