Quote:
Originally Posted by TrishaPDX
Hey Trixiedee,
I hope you can find a local ally. If you have a good naturopathic clinic or physician or school of naturopathic medicine, I suggest that you post a notice that you'd welcome a conversation with others who are finding their way through Parkinson's or other complex neurological conditions, including Lyme disease which sometimes does mimic Parkinson's. You will find success stories, perhaps some resources that apply to you and, hopefully, you will find some deserved compassionate companionship.
With Jan's experience, we learned that mucuna by itself is inadequate L-dopa support. With the right individualized balance of aminos L-Cysteine, 5HTP and L-Tyrosine, it becomes a viable alternative to Sinemet, at least it is that for Jan and a few others we've encountered. I wouldn't attempt to represent the research behind NeuroAssist, nor should I. My role has been to hack into every lead I could find that might offer Jan a way to heal. I learned about using mucuna and aminos here on this site, and thank all of you intrepid people who are so courageous and determined to be well.
All good wishes,
Trisha
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This is helpful to those who are at the very point of diagnosis and coming to grips. It's a shame that our national advocacy organizations do not endorse it as a viable treatment option. I wonder why that is?
I appreciate what you are conveying, but frankly, in trying to rebuild a faulty chain of amino acids in the production of dopamine misses the whole point in how many of us got here through differing pathologies in the first place. A person who has a genetic mutation on their Park2 gene might need an entirely different blend than another; genetic testing isn't regularly done that I am aware of, so how do we have a clue? If it were a matter of tweaking these things, I think neurotransmitter balancing would have become a standard treatment approach by now. While I suppose anything is possible, I can't imagine how long it would take to mimic the the delicate biochemical balance that occurs in a healthy brain let alone the PD brain.
With all due respect, this approach appears just as crude as taking Sinemet. It is attempting to replace what is lost, fine. How do you then account for the resulting impact on the other neurotransmitter acetylcholine? Both are responsible for the motor symptoms of PD. With too little dopa, we end up with too much acetylcholine- at least some of us do. Some of us end up losing that too... how does Neuro Assist address this? Other neurotransmitters like Serotonin and Norepinephrine factor in as well.
I think this debate would be great as another thread, but I think to continue here in this vein is wrong given the tone of Trixiedee's posts. She is fed up and seems to need immediate relief. Maybe this could be explored once she feels better, but for now it seems like she needs something that will work...quickly. I could be wrong, but her posts don't exactly cry out that she is in a place right now for experimentation.
Laura