hey there Jane!

I am really sorry to hear that the neuro office is kinda tossing you around. I hate how the system works, I really do.

Have you had an MRI yet? Or spinal tap?

When I was dx last year with MS, I was first misdiagnosed for a month. The doc thought I was a hypochondriac. Then after a month of my health rotting away and I was waking up out of my sleep feeling like I was dying, I saw a different doc.

He knew there was something neurologically wrong with me. He ordered an MRI for that following monday and said that I would have results by friday and they would have an idea of what was wrong with me, well things went a lil different. My MS had woke me up saturday night/sundaymorning making me feel like I was dying, I couldn't breathe right, walk, talk, no coordination, it was bad so my grandparents rushed me to the hospital and they went ahead and gave me my MRI that day, read the results that day, neuro walked in and said that I have alot of plaque in my brain and they needed to do a spinal tap to verify because I had a 99.9% chance that I was an MS patient.

Sooooo I got that nasty spinal tap to verify and here I am!

I guess they do the spinal tap to verify that you don't have ..I wanna say menningitis? but I could be wrong, they said if my spinal fluid was cloudy then I did NOT have MS. It was clear. lol

So what tests have they done on you for your dx?
It seems to me like they think you have MS but just haven't done those few things to stamp and official-ize it?

If it were me, since it's not official yet, I would go with the ' I DON'T have MS' for now at least.
Sorry you're in limboland right now. It definitely sucks. Hang in there!

-Ana D