Quote:
Originally Posted by Sarah Mae
While I think this is a wonderful resource, I don't use any of them because I cannot read all my results and make any sense of them. I have tried very hard, but just can't... so I don't understand what needs to go in each chart. I do have a huge binder of my medical records, and that has been good enough for what my doctors need.
I have absolutely no trouble understanding results form tests and procedures for all my other medical problems, such as back problems and PCOS. It's just all of this neuropathy things that I get so confused about. I don't know why.. but none of it makes sense to me and I struggle with it.
It's good for those people who can make sense of it and find what they need to fill out the charts, though.  |
For you the charts might just help in keeping track of the tests you've had. I understand you've had POTS since childhood, or maybe since gastric bypass--it's not clear, as well as PCOS and polyneuropathy. The spreadsheets are a way, for you, of handwriting in organized way the tests your doctors do so you can see changes over time. They download as spreadsheets that one can write on and change to fit your own circumstance. So for you, for instance, you might just want to follow, over time, you BP, or time out of bed, or vitamin levels. Best of luck. Though I too, after skimming your journal, could not quite understand what pre-dated gastric bypass and what did not or figure out how knowledgeable your doctors are about POTS.