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Originally Posted by dankgrl13
It's rare to find a young person with a spontaneous csf leak. Im 24 and have had one for 7 years. Ive been through blood patch hell as well. Fibrin glue patches are more effective/less invasive than surgery. Ultimately the ct myelogram is the definitive test to locate it. California, specficially UCSF and Cedars sinai are the hubs for this. I have a ridic long history, so if you have any specific questions let me know.
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I got a spontaneous leak in April, and had 3 blood patches to repair it. I have been feeling better (for the most part), but a recent MRI showed that I still have fluid pooling in my T2-T6 region. We don't know if it just hasn't reabsorbed, or if there is still a leak. Seems weird that I'm not having the killer headaches anymore if I am still leaking. Tell me more about your situation. 7 years? How have you known? How have you felt? Thanks!