Originally Posted by tessavee

Sorry about your diagnosis. I have been living with GN for 3.5 years. Had a one year remission but when it came back in June, it came back in a big way. I am lucky enough to get surgery on Monday and hopefully, I will be a good statistic. As in cured. I can't live on the meds and they really don't work well anyway. Right now I am on tegretol 800mg and lyrica 300 mg. I haven't raised the dosage in 2 weeks so the effects are nearly gone and I am going on my 3rd really bad day in a row. I feel like I am at toxic levels already with double vision, balance problems, and difficulty finding words. It is difficult to drive and basically to live a normal life. I have been off work since the 16th of August. Surgery is my only choice.

Anyway, welcome and I hope for luck with the meds.

Tess