Originally Posted by Sheltiemom

Am a fairly new member (7/10), and yes - some of us do read your posts or we wouldn't be responding.

Am very interested in the Lyme disease thing as you have presented it and urged that the blood be sent to Igenex. Was tested right off the bat for it when this neuropathy began in January, but at the Cleveland Clinic and who knows where the blood was sent - I don't. So will ask that more be drawn to test for Lyme and its piggybackers and sent to Igenex.

It's awful that a diagnosis was so long in arriving for you, but as you point out you do have waxes and wanes of your diseases and that's encouraging. You haven't let your problems get you by the tail without fighting back. That's real spirit.

And thanks so much for all of the tremendously informative things you've posted for the rest of us, such as the charts. Plan to take the list of tests to my next neuro appointment on 9/21, although I did have lots of bloodwork at the very beginning - but not the peripheral neuropathy panels except for maybe one.

Best wishes,

Sheltiemom
(maybe the newest member, but probably the oldest)