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Originally Posted by lisa6262
I'm back. Wow. Such a world of info here. As noted before my RSD started after surgery on my foot. I can't take pain meds and I have severe pain in my foot as well as sciatica. Up to now I continue to see my pt (some days I think he helps and others I feel worse). I have had 3 nerve blocks (very little relief). I have just been approved for a spinal cord stim. I see a lot of mixed reviews on this site. Of course, my pain mgmt clinic are all rosy and happy about the SCS. I should have my trial implant late next week. Until then, I will continue researching. Trying to teach others, family and friends about this disease is not easy. However, I did join RSDSA and have downloaded info to allow others time to do their own research when I am not around. My family (with the exception of my husband) is very skeptical about the SCS. Thank you all for your support. Sometimes I feel as though I dwell on RSD too much...although pain makes you think about it all the time.
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You are not a dweller.. you are in pain and don't look now but RSD consumes our days AND nights...RSD becomes our dancing partner..We manage our days and events by our pain level at that particular time..Not sure that is a bad thing..just a sign we have accepted it as part, only part, of who we are now...
I, like you, am not able to with stand pain medicine.., of any kind..There are days I grow large teeth and a green pigmented skin color (only teasing).. Living with pain levels this high has taught me to be much more patient and not to take out my 'discomfort' on others..whew..work in progress..but it has also taught me to appreciate the softer, more lighthearted things in my life.Without RSD, I dare think I would have missed out on these more gentler parts of my life otherwise..
I, too have had nerve blocks.. 4 out of 5, biweekly.. they did not prove positive for me either...AND I do have a SCS unit..that baby lives in my back left hip.. The trial was a good thing so I moved forward with the permenant implant.. because I am a small statured lady they decided to wait until the small unit was manufactured, over 8 months later..I had the surgery only to have my RSD spread (now I am whole body RSD) and my SCS is not helping me, it actually hurts me, makes my pain worse when it is on.. BUT..it is important to know we all react differently to all interventions, including the SCS so I am only a statistic... basically I am saying I ma not sure what you should do...alot of help I am huh??? Have you considered a pain pump?? Get the medicine administered thru a pump not orally??
BUT One thing that really has proven to be an absolute positive for my RSD is to have met all of these wonderful special people here on this board.. The support and love you will receive here is unmeasureable.. One of the nicest things RSD has ever done for me...
Great to talk with you, Lisa...
Hugz, Kathy