Originally Posted by brandi

I would welcome any help at all and thank you for any help. I have been rejected by several leads I had through my family doctor. I was given a
doctors name from the University of Pennsylvania but the doctor is in same
pratice as one i was rejected from. I also cant believe doctors are allowing
staff that answers the phone to just turn you away you cant even get an
appointment with the doctor without going through someone who has no
clue whats wrong with you or everytime you call you have to refresh their
memory why you called the day before. I can understand having to send
tests and such but then to be turned away without a full history or even
the actual mri pictures is not right.

I was told by the U of P doctor that the office turned me away to see
a neurologist and they only were going on the written MRI report which
had no mention of the Chiari Malformation, Slit Ventricles, or Tethered
spinal cord all was found by a neurosurgeon who did not want my case.

I am in pain daily, dizzy, severe headaches last neurosurgeon refused even
medication told me to learn to live with it if I could function I would do it.


Any advice on who to stay away from or where to go will be such a help I had to move back with my parents to PA from New York due to my boyfriends
work hours and me being alone I want my life back so any help from anyone
would be more than welcome.

Thanks
Feel the burn and hope your doing well

Brandi