Quote:
Originally Posted by Vicc
As you already know, I'm an advocate for HBO in treating RSD. In fact, I believe it is the only available therapy that offers any hope for ending the ravages of RSD, yet I never talk about it here. I guess it's time I started.
(In my next post about symptom migration: what causes it and how to prevent it [hint: buy grape seed extract], I will discuss the role of oxygen free radicals (OFRs) in both processes. And lest someone labels me a health food fanatic, I don't have enough money to buy vitamins. I urge everyone to take GSE because it works).
You see, in RSD the experts have been 100% wrong for 100% of the time. They are still telling us that this is a neurological disorder, despite that fact that at least some of them know about IRI (one even wrote an article about it), and know that this makes more sense.
In the next few days I will publish a post showing why RSD can't be the result of a nerve injury; I expect two or three polite comments while no one pays any attention to what it says. It's going to be an interesting (albeit frustrating) next 15 to 20 years.
|
Vicc, I have a few questions for you, if you don't mind...
You state that HBOT
"is the only available therapy that offers any hope for ending the ravages of RSD" and I guess I am just wondering, if that is the case, don't you still have RSD? Have you personally had HBOT? Or are you saying it works the best out of all the RSD treatments? In your opinion, are all other therapies useless? There are studies out there for instance, that have proven physical therapy alone has "cured" adolescents with RSD. No medication. Just physical therapy. I guess that is why I am a big advocate of the PT. I am going, it has helped me, and I plan on doing that to recover. I am not against medications (just using that study as an example), and I am using them along with PT.
I am VERY interested in your post about why RSD can't be the result of a nerve injury.
Why do you say, "
You see, in RSD the experts have been 100% wrong for 100% of the time. They are still telling us that this is a neurological disorder, despite that fact that at least some of them know about IRI (one even wrote an article about it), and know that this makes more sense." ? How have the experts been 100% wrong 100% of the time? Can you give examples?
What is RSD? What type of disorder, if not neurological? Why isn't it part neurological? The RSDSA states that it is part neurological/ part immune system malfunction (do you think that it could possibly be both???). (
http://www.rsds.org/pdf/Recog_Undrstd_TreatRSD_530.pdf)
"CRPS/RSD occurs when part of the nervous
system and the immune system malfunction
as they respond to tissue damage from trauma,
such as an injury or a medical procedure.
The nerves misfire, sending constant pain signals
to the brain. There are two types of CRPS:
Type I (RSD) and Type II (Causalgia), which has
definite nerve damage."
About the GSE- how do you prove that it does stop symptom migration? How can you? My RSD has spread... and spread. Would you really tell me that if I had taken the GSE, it would have stayed only in my one upper extremity, and I would not be dealing with what I am today?
I have read many of your posts. I can get along with your theory of IRI/ RSD. I have RSD in both upper extremities and both lower extremities. I slammed my finger in the car door, and that started my RSD. Your theory seems logical, and maybe you have the right knowledge and answers. I would like to ask you many more questions, if you would be willing.
Thanks.