What concerns me about what you said about your "heart issues" getting better on Mestinon is that Mestinon has been shown to help those with ischemia or narrowing of arteries.

I honestly believe that the more urgent issue here is making absolutely sure there isn't a heart or circulation issue, due to the odd blood pressure changes.

Having had more then one SFEMG or RNS or regular EMG, I know they are not fun. However, they are necessary in order to determine if you have MG and how bad it is. I personally would go through with it but you have to consider all the variables of your situation, along with talking it over with your neuro or primary doctor.

I also do not think you should have to pay for that first test! It's like having someone do a glucose test after eating a hot fudge sundae or a cholesterol test after eating a Big Mac. It completely skews the results!

Annie