Quote:
Originally Posted by bo55bbie
Hi,
I have had pain for over 11 years on the rt side of my face. I had MVD done after meds not working. It had worked a little but still on a boat load of meds. My question is does anybody know of a neurosurgeon in the Midwest who does MVD procedures? I went up to Indy but that is far from where I live & the NP kept chaning my appt date without telling me. My husband will not take me there anymore. I never had a appt date after surgery.
I have really found the forum useful. Thanks for any info that can be given.
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Sorry for all you have gone thru. couple of questions. What kind of TN do you have? did they find a compression? how long has it been since your MVD? have you seen your surgeon or spoken with him since the surgery at all? what did he say?
I ask all these questions so I can try to answer you better. I personally had 2 MVD surgeries for typical TN. I was pain free for about 5 or 6 weeks after my first surgery and pain came back. my surgeon wanted to then try gamma. I got a second and third opinion and ended up going to Pittsburgh for a second MVD and they added more padding which stopped the pain.
I am telling you this because so etimes there is a reason for the pain returning and they can fix it. Sometimes MVD is just not very effective no matter what. TN can be such a hard disease. it can be such a struggle.
iwill look for your reply.
Easygoing