I responded to you before but I can't find it now. Sorry.

I have PM. It started as a terrible ache in the muscle in my left thigh. My CPK was high so I had a biopsy. I started on low dose prednisone but it made my blood pressure and blood sugar soar. So, I am off meds and my CPK is higher than ever. I have an appointment with a reumy in November. I don't know what he will do but I'll see. They tell me there is a PM specialisit in Rochester, NY which is not too far. If I need to I'll go see him.

The thing is, right now I feel mostly fine. The pain in my leg is gone. I have a nagging pain in my right arm but it is getting better. I can live with how I feel. I don't know if a high CPK is dangerous. If not I'd just as soon let it go.

Write back and let me know how you are doing, please.