Quote:
Originally Posted by RNcrps2
I wonder when she was diagnosed-maybe she was one of the lucky ones caught between 3-6months.
Finz you are so right!! A snapshot is not reality. I go to my kids games taking extra meds and then paying for it later, but it is sure worth seeing my kids play!
It is hard for others to understand when they only see what we let them see. momof4
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I think Paula claims she's had it for many years.
For the past 3 years my wife has been rejected by SSDI after getting ill with this disease and earning that benefit by working 30 years. Her doctor wanted her to perform an FCE test to determine how bad her full body RSD is. Those performing the test disagreed because the test can not take a snapshot of her true agony. They knew it, my research confirmed it but the doc had no clue. I wrote a letter to the doc explaining the best I could to get this doc to remove this requirement and she did.
