I was recently diagnosed with RSD/CRPS even though I might have had it for 6+ years.

When I was 17, I fell and dislocated my right knee. From then on my life has been a living hell of pain and doctors just telling me that is was in my head. I also noticed this large (growing) bump on my right foot that would swell up and hurt every time I walked. Of course they did x-rays and told me I had a bad case of a bunion. They told me when I was close to my mid 20s I could get it removed.

Now I am 23 years old, that bump was actually a broken sesamoid bone that was fractured in 4 places. I lost all feeling in my right foot due to the pain never being treated. I had surgery to remove the now dead bone and still have severe pain in my right foot and lower leg. That was when the doctor finally diagnosed me with RSD. Pretty much I wouldn't have RSD if some dumb doctor could have read an x-ray right, but who knows.

My RSD has spread to my leg and right now it has stopped at my knee. I can barely walk because the pain is so severe. And rely on others to drive me around. I normally use a wheelchair when the distance is more than 10 steps.

I have been looking for a support group for numerous reasons in the san diego area and have found none. So I am hoping this site might help me with all the questions i have.

So far my treatment is:

Lumbar injections every 2 weeks
Acupuncturist 2 days a week
Physical therapist 2 days a week
Physcologist once a week
marriage councelor 3 times a week
pain meds (percocet) every 2 hours.

So far the pain has yet to be decreased.