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Old 09-18-2010, 06:23 PM
onmyjourney onmyjourney is offline
New Member
 
Join Date: Sep 2010
Posts: 1
10 yr Member
onmyjourney onmyjourney is offline
New Member
 
Join Date: Sep 2010
Posts: 1
10 yr Member
Default I use the compound you are looking for

Hi, i've never posted here before but I saw your post and even though it has been a few months i felt compelled to reply. I am in the Tampa area in Florida and my doctor has a compounding pharmacy make the liquid you are looking for. It is called "speed9/ketamine" by the pharmacy. It is a gel type yellowish liquid that is externally applied. It contains multiple medications like flexeril, ketamine, anti inflammatories, lidocaine, some kind of "speed" thing ,etc. It works wonderful and I have never had any kind of side effect. I take medication and I prefer to avoid having to take the pills if I can so I love the compound gel because it is usually enough to keep me from having to take a pill. Best of all there is no mind altering effect from it ( i dislike the way many medications cause a variety of mental and emotional side effects). The pharmacy I use mails my medicine to me even though they are only 30 mins or so away because I can't sit in the car and deal with a 1 hr round trip just to get the med. It is VERY inexpensive as well- my insurance wanted me to pay 135$ but the pharmacy charges me their price of 35$. If you'd like to have your doctor see if they can talk with the pharmacy and have your med mailed to you it is called Promise Pharmacy and located on US HWY 19 in Palm Harbor. They are really nice helpful people there- WAY better experience then when I use drugstores like CVS and walmart that have horrible patient treatment. Anyways I hope it helps you, I'm fortunate to be in the Tampa area there are a lot of drs doing some good work on RSD and I feel blessed to have such great ones that care so much.


Quote:
Originally Posted by loretta View Post
Hi Jonee, I am so very sorry for you and your daughter. I'm 62 and have RSD for 15 years now. I did have a couple remissions for a year or more in the beginning with PT. Now it is full body and internal. Abdomen and pelvic region. It is HOT to touch and internal fire-sweating skin. Very difficult to deal with. My gyn is looking for a compounding pharmacist to make up a cream to put on outside and inside. Others use it-ketamine, lidacaine . If you would like, when I get a prescription, I'll pass it on to you. There is a childrens wing for RSD at the Cleveland Clinic that some have been to. How old is your daughter? There are some young people-teenagers that have RSD and their mothers post here.
Please know how much we are-there is a lot of educated people here and always willing to share information, and be of encouragment. One of your new friends, loretta
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"Thanks for this!" says:
loretta (09-20-2010)