Quote:
Originally Posted by easygoing
Sorry for all you have gone thru. couple of questions. What kind of TN do you have? did they find a compression? how long has it been since your MVD? have you seen your surgeon or spoken with him since the surgery at all? what did he say?
I ask all these questions so I can try to answer you better. I personally had 2 MVD surgeries for typical TN. I was pain free for about 5 or 6 weeks after my first surgery and pain came back. my surgeon wanted to then try gamma. I got a second and third opinion and ended up going to Pittsburgh for a second MVD and they added more padding which stopped the pain.
I am telling you this because so etimes there is a reason for the pain returning and they can fix it. Sometimes MVD is just not very effective no matter what. TN can be such a hard disease. it can be such a struggle.
iwill look for your reply.
Easygoing
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I had pain off and on for many years and than it became continuous mostly at V2 on Rt side, although I would feel pain also at V1 and V3 both on rt side. My neruo dr diag me with TN on Rt side. The surgeon said he found a compression and a vein around the nerve. He 1st thought I hadMS but ruled it out with MRI. I presently take 400 mg tegratol ER in 2 doses, 3oo mg Lyrica in 2 doses, 10 mg in 2 doses, elavil 225 mg in 1 dose, and pain med prn , usually 1 a day.
I have not seen my surgeon since day before I left hospital after surgery. I have tried to speak to him but always talk to NP. She changed dates of appts. without speaking to me several times and when i call up she says I have to go that date or schdule it for several months in advance-she even changed the date of my surgery this way and cost my husband work that he had scheduled.
I would like to find another surgeon closer to me but I have not found anyone. My pain had gone from my cheek and a less from my chin area but very strong in the forehead, upper side of nose and in eye. Without meds it is all the time and sometimes with the meds I have pain. I do like my neuro in Evansville but wanted to find surgeon that was closer to me than Indy as we live abouth 6hrs from them. With the gamma can that be used before another MVD if it doesnt work? They did the needle in cheeck and tried for 4hrs but could not get needle in the right spot.