http://www.cnn.com/2010/HEALTH/09/20...ex.html?hpt=C1
http://rarediseases.info.nih.gov/Res...aspx?PageID=31
Apply to go there. It's just a hop over the ocean. I know, that's easier said than done in your condition. But what if they take you? That would be amazing. You need help and hope. They are also talking about this on CNN's AC360 tonight.
I had to at least throw this out there.

Annie