And I'm not Annnie either, but you're welcome, Rachel. Sorry, I couldn't resist.

I guess I should've addressed it to all of the "scary undiagnosed" but Rach is the one I thought of due to how bad off she is and how little help she is getting.

Why do patients have to even get to that point of going to a rare disease program? So many of us don't have that rare of disease yet go undiagnosed for years. It's pathetic.

We have to get these doctors to start working in teams. WITH a smile on their faces.

Annie