Thread: New & with RSD
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Old 09-21-2010, 08:03 PM
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bgus1969 bgus1969 is offline
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Join Date: Sep 2009
Location: St. Petersburg, Florida
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15 yr Member
bgus1969 bgus1969 is offline
Junior Member
bgus1969's Avatar
 
Join Date: Sep 2009
Location: St. Petersburg, Florida
Posts: 33
15 yr Member
Wink feel your pain

Quote:
Originally Posted by painfull View Post
I'm new here and have recently been diagnosed with RSD. I am very overwhelmed with the constant dr appointments. I have been able to remain at work, only because my employer is so understanding, not because this disease is giving me any mercy. I am here to find some friends or atleast someone who can relate to what I'm going through. I am very fortunate to have an entire team of dr's on my side. But there are no support groups in my area, it becaomes very lonesome when you feel you are the only one with this problem. A year ago I was training for a triathalon and now I can't walk with out a cane. I was hurt at the gym training with a trainer, but you know I signed a liability waiver to sign up at the gym....all the gyms do that. So I have no recourse with the gym. If i don't work, I don't see my dr. I can't go through the day with out my medication, the pain makes me cry all the time. With my medication I can walk a block, with out I can't walk at all. I'm still very angry at the world for this disease, but I'm trying to work through it. I wish I had never seen that trainer, or pushed myself that hard. I tell myself had I not been hurt at the gym maybe I would still be ok, or if I had health ins at the time and been able to see a dr right away maybe I could still walk. My drs say the injury went so long with out help that it has become RSD on top of the injury. I'm sick and tired of being sick and tired. I have no energy to do anything and I throw up atleast 3-4times a week. I ask my therapist how much can 1 person take, and he just says "more than you know". I suppose I am full of different emotions all the time: anger, sadness, confusion, even embarrassment....but not much happiness anymore. I HATE THIS DISEASE!!!
Hello there. My name is Brian. Although I don't have rsd, I do have hydrocephalus. Ihave pain like you describe but in my head everyday. i have been on vicodin for 2 years and am ready now for percocet because no other medicine helps other then narcotics. i'm like you in the fact it's really hard to accept this and that theres no cure. Nobody understands unless they go through it. Ever since my 2 brain surgeries I suffer from major depression. If you need a friend to talk to i'm here.
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"Thanks for this!" says:
Rrae (09-21-2010)