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Old 09-22-2010, 09:54 AM
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,431
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,431
15 yr Member
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Quote:
Originally Posted by lynn01 View Post
The doctor ran tests for b12, folate, diabetes, arthritis, thyroid, paraprotienmia, ect. He listed the findings from the NCV as systemic sensory-motor pheripheral nueropathy with dymyelinating and axonal features. The EMG was negative for an active radiculopathy. Examination revealed absent DTR'S on both ankles, and stocking distribution hyoesthesia, he also made a notation that I have high arches. I take Mobic and flexiral 5mg if my back is acting up with muscle spasms. I have 2 discs that herniated 3 1/2 years ago, but he say's that is not what's causing the problem. He prescribed me lyrica, I will only take it in the evening because it makes me tired. I'm not a big fan of medications so I don't take them regularly. The nerves that are affected are the peroneal, tibial, and sural. The peroneal seems to be affected the most, do to no response for sensory or motor stimulation for the right side. and n/r for the sensory on the left side with decreased response for the motor on the left. all f-wave studies had prolonged latency with no response for the right peroneal nerve. Because my blood tests came back normal, he is not ruling out hereditary or the possiblity of a femoral nerve problem. I thought that femoral dysfunction usually only affects a single nerve, but I'm not a doctor so what do I know. Everything I've read online about sensory-motor nueropathy is that it is a system wide problem affecting the whole body.
Just a thought. Have you had any DNA blood testing done which might rule CMT in or out. There are many types of it. It is hereditary. A good neurologist who knows CMT would be of help to you if it turned out to be CMT.

Are there any others in your family who have symptoms? Thank you.
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