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Old 09-22-2010, 11:34 AM
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Aarcyn Aarcyn is offline
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Join Date: Jan 2008
Location: San Diego, CA
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15 yr Member
Aarcyn Aarcyn is offline
Senior Member
Aarcyn's Avatar
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
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I know a man who is having the initial MRI done in the beginning of October. If he has a blockage, he will have the procedure. Should be interesting.

I hear that the statistics are 1/3 patients have noticeable positive change, 1/3 gain small change and 1/3 have no change at all.

If I am a "glass half full" personality, then a 60% chance of something good is pretty good odds. Better than the ABCR's @ 30%.

Too soon to determine long term effects.

The lack of a control factor remains. I agree with Lady that if I was to proceed, I would want the Zamboni protocol. And the doctor trained in the procedure.

There is a certain amount of desperation. Can there be a tipping point in the damage to a nerve? I know about the two credible sources Kicker mentions. Both in wheelchairs. Can that be a factor?

Location of the lesions. There seems to be a better result if the lesions are in the brain rather than the spinal cord, right? That is why there is less success for PPMS?

My PCP's husband has SPMS. We talked and factors such as age come into play. She said the veins are less flexible with age and could lead to complications. One needs to have a very competent doctor.

I still want to know if I have a blockage. Just the first step is where I am headed but if given the chance, I will do it. I am moving in that direction.

I just wish we would hear from IR's rather than neurologists. I like the analogy of not asking an electrician to be the expert on a plumbing job.
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