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Old 09-22-2010, 05:31 PM
Burntmarshmallow's Avatar
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
Burntmarshmallow's Avatar
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
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Hi Kimberly want to welcome you to the t.n forum at NeuroTalk it is a great place for support and info and understanding folks.I have been kinda busy with life and not around as often .
I wanted to share that when I was on neurotin it made me extremely depressed and suicidal . I am allergic to anti seizure meds too I found out riding the med merry-go round. I have a PNS now and am able to manage my pain so much better with the device then with anything else. I have A.D. in lower right trig nerve from it being snapped during auto accident. My PNS was last option after a pain pump implant in back of head was ruled out as the morph in i.v. didnt help for the pain during trail .
I always dread sharing my story because it seems to scare others but to me it has a happy ending with my PNS . we must all keep in mind each of us are different and so is T.N. and the different forms of t.n. the more we share the more hope we leave for others to find a way to manage and lower this pain. there is allot of different things that work for people, so dont give up .
I have to say I notice you said a permanent cure .. I am not sure I agree there is a permanent cure. I think there is remission . I think certain things like mvd or meds can allow one to go sometimes 5-6 years pretty much low pain or pain free but I dont think there is a cure that lasts forever or the rest of ones normal life span. that is just my personal opinion.
When are you having MVD. I must catch up here I certainly missed allot being away busy. I want to extend a welcome
to You
To Bluemom
and to Bulliemom
glad you all have found your way here cant wait to get to know all of you.


PEACE
BMW
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