I'm so sorry for your frustration and I understand. That is the suckyith part of this disease....the unsureness, the waiting, the seemingly, discompassionate Medical community etc....

We have all been through this, to one degree or another, so we do understand. Since there is little you can do to rush them, Take a deep breath and get on with your daily life, as best as you can.

See your PCP to help you manage and medicate your symptoms.

Keep as much stress at a distance as you are able and Try to enjoy life, as much as possible......while you wait.