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Old 09-23-2010, 05:52 AM
gabbycakes gabbycakes is offline
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gabbycakes gabbycakes is offline
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Join Date: Oct 2008
Posts: 518
15 yr Member
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Quote:
Originally Posted by llrn7470 View Post
I have had a total of five recent attacks that seem to be mediated by my spinal nerves and wanted to see if anyone has ever heard or experienced this. Be aware, this is kind of gross.

These "attacks" come at insignificant times-they don't coincide with worsening of my RSD pain, changes in my SCS levels, or any kind of outside stress. Just while I am sitting around or standing doing something. No heart-racing/palpitations. I am very suddenly becoming vaso-vagal (sweating, dizzy, disoriented, and feeling like I am going to pass out,) quickly followed by losing control of my bowels. Very embarrassing. This has actually happened in my sleep as well. Two of the episodes recently, I lost conciousness completely-flat on the pavement in a parking lot, then again trying to get to a bathroom after the "damage had been done." I was so disoriented that I was running into cars while walking towards the restroom and having difficulty speaking, couldn't think straight. I have no seizure activity and no seizure history. I don't lose control of my bladder.

Any ideas on this (very off-putting) stumper, my RSD family? Are my spinal nerves trying to make me die of embarrassment?
All of the responses you got I have also heard of but one more thing comes to mind. I know you mentioned not having seizures but I have a niece, 23, who has epilepesy(spelling) and when she has a seizure she loses control of her bowels and urinates. Just a thought. Good luck.

Gabbycakes
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llrn7470 (09-23-2010)