You've found a GOLDMINE of info here!
I'm sorry this battle is robbing you of your precious time with your babies, but don't lose hope. PN can be a long arduous journey by process of elimination of endless testing.
Listen to MrsD!! She just gave you the nut-shell breakdown of things to target (Thyroid is a BIGGY!)......a shortcut that, had I known about at the time, would have saved me about 5 office visits from 3 different Drs! I'm so grateful I found this forum!
At the top of the page is a very important section, if you haven't seen it, PN supplements, etc.......this info can be a very valuable tool as you wait for outcome of diagnotic tests. These are things you can do to improve your quality of life as you wait for answers.....and don't be surprised if you get the big 'idiopathic' stamp put on your file......meaning no one knows the origination of the PN. To this day, I still have questions, but have made it a priority to do the best I can with the resources I've got.
Glad you're here....
It's a wonderful family
Rae