I didn't got much worse on Neurontin as well. It was a period of deep realization and zombification at the same time. Aches I had never had before and Neuropathy got much worse. I fear that this is what most people go thru, but are not so lucky to come to the realization that the medication only begets more medication. When I stopped the Neurontin, I was able to create a baseline from where I could identify what triggers my pain. Once I identified my triggers, I was able to avoid them more and more. I noticed that leaning this way or sleeping that way set it off. So now I was able to avoid the triggers and pain. As well I developed a routine and began walking as much as possible.

I will admit at the time I was taking the Ayurvedic herbs- Bacopa and Gotu Kola which was tremendously helpful coming off the Neurontin as some of its effects mirror that of Neurontin. But, those herbs also combat oxidative stress, lift mood and most importantly don't make you worse. Later I realized the importance of antioxidants and supplements in combating this thing. Although my regimen has changed much over the past 2 years, one of my most helpful supplements has been Pomegranate Extract. I think it is the Nitric Oxide stimulation(circulatory) it affords in addition to its role in combating oxidative stress.