Thanks Nancy. Im in Ireland and am scheduled to meet with my potential surgeon on Tuesday next. I have met with Dr Donlin Long this past March and feel that I am safer to undertake the surgery at home of at all possible. Two main reasons being here I am covered by insurance where as to travel to the USA would be a cost my family could not afford without undertaking fundraising; Secondly, in respect of long term aftercare, should anything go wrong when I return home, no surgeon will interfere with the work of another so it would mean more cost of returning to the USA.

I would be grateful to hear of your outcome from your surgery however. Dr Schrot is a new name to me in my research. Do you have an underlying condition causing your TC or do you know why it happened? I have a very rare Connective Tissue Disorder which I believe is the cause of mine.

Thanks Rachel