Quote:
Originally Posted by legzzalot
Ok so the decision was made to continue the ty even though it has brought my thyroid back from the dead.neiro says she has to test my cd4 every month before infusion and if it drops below 200 they have to pull the plug. Then of course we discover my ins preauth expires on sunday so they scheduled me for today which means no time to test it this time. Anyone else being told they have to be tested monthly?
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My neuro told me that the C4 and C8 counts don't tell us anything that would be helpful while you are on Tysabri. I've asked several times (and even another neuro in the clinic) but I don't remember the reasons why they said no on testing.
