bluesky,

Thank you so much for all of this information!! I am in the same horrible boat as you and Desertflower. I became symptomatic in 1997, but none of my doctors would believe me or even test me for anything. I was told in 2000 by a team of neurologists that there is no neurological condition that waxed and waned. 10 years later (May 2010) I learned about Mg and realized that I had been lied tol. My symptoms have become greatly exacerbated since April 2010 and I have been fighting to get an MG diagnosis after I learned of MG and the fact that I am an absolute clinical match. However, so far none of my tests are positive so the doctors are refusing diagnosis. Regardless, my mother made me apply for SS disability within a week of me no longer being able to work. The case as gone now where so far, but at least the paperwork has been filed.

I don't know if I can get a disability without a diagnosis or a doctor to back me up, but I have to try. I'm so close to living under a bridge... This is horrible. I feel for all of us.

Best,
Lindie