View Single Post
Old 09-24-2010, 11:34 PM
aeb105's Avatar
aeb105 aeb105 is offline
Member
 
Join Date: Nov 2009
Posts: 110
15 yr Member
aeb105 aeb105 is offline
Member
aeb105's Avatar
 
Join Date: Nov 2009
Posts: 110
15 yr Member
Default

The best thing I ever did was get off the Neurontin. Neurontin made my problems go from bad to 3x worse in a short amount of time. I had the suicidal bout as well. Alot of it had to do with the fact that it took facing alot of nasty egos to get the neuropathy diagnosis and then realizing that the only releif was this drug or its competitor. It was the worsening of my GERD, intense sensory deprivation and detachment that made me drop it. The crazy thing is that I looked at alot of these people on the forums and they only get worse on these medications. If you are in agonizing pain there is no doubt that something is needed to quell that pain. The most agonizing of mine came when I was on the drugs as I was haphazardly doing things that were triggering my symptoms and was constantly burning.

When you can't feel, you can't get better I found. That being said the anxiety that goes along with this disorder needs to be dealt with. I have experimented over the last 2 years with a regimen that works for neuropathy. The amino acid Taurine could help you step down off the Neurontin safely and take long term if it suits you. Initially, I used an herb called Bacopa and then added Gotu Kola to step down and stayed on those for about a year. Both of these work like Neurontin but also have antioxidant power, and stimulate acetylcholine(memory and nerves) among other things. Then I found Taurine, and realized it didn't snow out too much feeling and at the same time kept me on an even keel. This is the key. We need to be able to feel as much as possible to mind our triggers(to not burn) and get better while at the same time dealing the the stress that this disease throws our way. I think the stabilizing of my condition and pushing back some came when I added Pomegranate Extract. It stimulates nitric oxide, increases circulation, crushes arthritis, affords antidepressant qaulities while keeping the mind sharp(dopamine), and balances hormones. I found it helped my symptoms immensely. Other have found Grape Seed Extract and Resveratrol(in small doses) beneficial for pain
__________________
Zeroth Law of Robotics

"A robot may not harm humanity or thru inaction allow humanity to come to harm."

-R. Daneel Olivaw
aeb105 is offline   Reply With QuoteReply With Quote